Showing posts with label social services. Show all posts
Showing posts with label social services. Show all posts

Friday, 25 July 2014

Council Tax reduces Disability Care Contributions

Currently a lot of people who had previously been eligible for full Council Tax Benefit are finding themselves hit by Council Tax bills. This includes many people on very low incomes unable to simply "go and get a job", such as carers and disabled people on ESA.

There is however one silver lining for disabled people who are paying social services for their care. This new policy might be cushioned slightly by a reduction in their contribution to their care costs.

Social services are supposed to deduct the amount paid in council tax from what the disabled person pays them towards their care.

Anyone who has had a financial assessment from social services and is paying toward their care should check to see whether council tax has been taken into account. (This will normally be listed under "weekly allowances".)

(Note: see below for comments re Bedroom Tax and PIP.)

Reasoning

The reason behind this can be found in the fine print of the "Fairer Charging Policies for Home Care and other non residential Social Services"

Paragraph 23 states that
Housing costs and Council Tax should be assessed net of any Housing Benefit or
support under the local Council Tax Reduction Scheme.
"Income should be assessed net of any Income Tax and National Insurance contributions payable and net of housing costs and Council Tax."
The thing to remember here is that "Income" for social services is not someone's actual income but the "eligible income", ie the income that is earmarked for care.

For instance to encourage disabled people to move into work, earnings and tax credits do not count as income. On the other hand benefits such as ESA do.
So rather ironically, someone on a salary of £50,000 pa would be said on paper to have an income of £0 per week, whereas someone on ESA has an income of over £100.

Social services cannot take as much money as they like, but must leave the disabled person with "Income support +25%".
They must also take into account essential disability related expenses, although in practise this varies wildly from council to council.
This is the "Fairer Charging Policy".

So essentially social services work out the disabled person's income and subtract

  • Any housing costs left over after housing benefit, 
  • Any council tax left over after council tax reduction scheme,
  • Earnings, tax credits etc
  • Benefits which aren't allowed to be used for care (eg mobility DLA)
  • Disability expenses

They then take anything left over (if possible) while still leaving the disabled person with money equivalent to "income support +25%".

Note: Care contributions can vary greatly dependent on what disability premiums people are eligible for and how generous councils are when taking into account disability related expenditure.
Many people don't have to pay anything. My own contribution has been as high as £96 per week and as low as £56 per week.
Ironically when I could still work and earned twice as much as I do now I didn't pay a penny!

Very Important Comment regarding Bedroom Tax


Given that social services must take into account housing costs there is a query as to whether this includes the bedroom tax for those affected by it.

The following (paragraph 23) would indicate that it should:
Housing costs and Council Tax should be assessed net of any Housing Benefit or
support under the local Council Tax Reduction Scheme.
It could be argued that the bedroom tax is a housing cost left over after housing benefit has been paid. If so, then the disabled person's calculated "income" is lower and their contribution should either drop by that same amount (if possible) or drop to 0.
For instance if someone was paying £30pw, they would only pay £16.
If someone was paying £9pw, they would now pay £0.

Disclaimer: While I know for certain that some social services do take council tax into account (my own do), I do not know their policy with regards to bedroom tax. However given this guidance it could well be worth a query.

Comment regarding DLA vs. PIP


If social services only provide day care then they can only count mid rate care DLA as income even if the disabled person receives the high rate of DLA.
As PIP doesn't differentiate between night and day care, the new rules state that that social services are justified in counting all of PIP as income.
This means that someone on mid rate DLA or standard PIP who is upgraded to enhanced rate PIP might not see a penny of it. It could be swallowed up in care contributions.
In practise the government is leaving this to the discretion of individual councils. In the long term this means that we can expect to see a postcode lottery as to whether individuals have the entirety of their enhanced PIP award taken as a care contribution.

An Example of a Financial Assessment


A financial assessment might look something like this
Let's consider a hypothetical disabled person receiving a care package worth £140 in direct payments.
They are in the support group of ESA but are able to do 2 hours of permitted work per week for which they receive £20 in earnings.
They also receive DLA high rate mobility and mid rate care.
They receive LHA but have to top up their rent by £8.00 per week.
Social services have recognised disability related expenses with regards to their wheelchair, other specialist equipment and an alarm system in case of falls. However they refuse to take into account dietary requirements, heating and other increased costs.

Weekly Income (including DLA both care and mobility):

  • DLA Middle Rate Care £54.45
  • DLA Higher Rate Mobility £56.75
  • ESA core component  £72.40
  • ESA support component  £35.75
  • ESA Enhanced disability premium  £15.55
  • 2 hours permitted work per week (earnings)  £20
Total = A = £254.90

Weekly Allowances: (disregarded income such as earnings and benefits not earmarked for care, money set aside for disability expenditure, council tax and housing costs, amount required by law to leave to live on)

  • DLA Higher Rate Mobility -£56.75
  • 2 hours permitted work (earnings)  -£20
  • Specialist Equipment -£6.73
  • Wheelchair maintenance -£3.85
  • Alarm button service  -£3.50
  • Council Tax  -£5.76
  • Rent Top Up -£8.00
  • Weekly Allowance under 60 (= Income support +25%) -£130.31

Total = B = £-234.90

Net Disposable Income = A-B = £20
Cost of Care Package = C =£140 (14 hours of direct payments at £10 per hour)
Care Contribution = the smaller of C or A-B, = £20.

Wednesday, 30 April 2014

#BADD2014: Support and Independence

This is my submission for #BADD2014, Blogging Against Disablism Day. Please do follow the link to read other blogs too. A second submission can be found here, and is an account of my time in academia.

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Attitudes towards both what is and our rights to an independent life could possibly still be one of the greatest forms of disablism we can see in our society today. Despite great strides forwards our independence is still considered an expensive luxury to be given or taken away.

For the past 17 years I have needed "personal care". This has been provided via social services in a number of ways, at first through care agencies and later through personal assistants I pay via direct payments.

I will occasionally tell people that this support has allowed me to stay "independent". This completely throws some people. Some have even laughed in my face.
"How can you possibly be independent? You need help with basic things like getting dressed, washing, cooking, heck, even cutting up your food!"

I consider this a failure to understand what independence really means. I have always made my own decisions on every aspect of my life.  This includes the small things like what I have for dinner, what time I go to bed, or simply what I watch on TV or what I do for leisure or social activities. But it also includes the big things like what job I do, where I live, what I spend my money on, whether I go away for a weekend or holiday, and who I choose to have friendships and relationships with.

The fact I need help with basic tasks simply means I require support in order to remain in control of my life. And that is what I consider independence to be about: control, rather than trying to do every little thing all on my own.  Does it matter that someone else cooks and cuts up my food? No. What does matter is that I decide what I eat and (roughly) when I eat it.

Refusing to view me as an independent adult is, to my mind, a form of disablism. I am not considered a proper equal simply because I cannot perform a few physical tasks. Yet in every other respect and in every aspect that matters, I am living exactly the same life as everyone else. I have the same responsibilities and the same rights.

After all, to some extent everyone requires support of some kind, whether they realise it or not. For instance parents may be reliant on their child minders in order to go to work. Commuters may be reliant on their train or bus drivers. Disabled people are simply reliant on their personal assistants. The truth is that the difference between disabled and non disabled people is not really as great as people imagine.

Admittedly the consequences of removing that support are far greater for the disabled person than for the non disabled person.  Removing or even simply cutting that support could impact on the very basics of life such as hygiene, dressing and eating and would certainly prevent them from continuing many social, leisure or work activities.

This is why support is so crucial and must not be cut, even in these difficult economic times. It is vital that councils somehow continue to fund the support disabled people need. The price otherwise will indeed be our independence.

However, with council budgets being squeezed year by year,  care thresholds being raised, caps being placed on community social care, disabled children being described as "burdens", the ILF being closed down with no clear budget replacement, social care funds not being ring fenced and the rationing of care hours (eg only microwave meals allowed, women told to cut their hair to shorten shower times, only 1 shower allocated per week, removal of social activities help, removal of night time care in favour of incontinence pads, etc), it would seem that for many that price is not too high in the name of economy.
Apparently our independence is deemed a luxury, not a right.

Tuesday, 20 August 2013

Social Services Cuts on the Ground:

I feel very ill today. Not a day I would normally write. But what I heard yesterday was so shocking that I can't settle until I've written it down!

I received a call from Social Services yesterday, asking to come and visit me that afternoon regarding my care plan.
I was very pleased as I had been hassling them for the past three months to come and see me and update my financial assessment to work out my contributions towards my care.

It soon became clear that this visit was nothing to do with this, but was my annual report "to check how my care plan was working out and that everything was ok".
I mentioned my issues with finance and the social services chap duly made a note to contact the finances department upon his return.

The chap was lovely: very friendly and understanding. He had a long sheath of notes from the last time I had gone through this rigmarole so he said we didn't have to go through all the questions yet again. He asked how I managed my carers/Personal Assistants (PAs), what work they did for me, how I managed and if I was happy with what I had. He checked on my safety, particularly asking after the number of falls I have, my alarm button, and my arrangements in case of particularly bad seizure clusters or coming out of hospital.

So far, everything fine and dandy. As we finished up he laughed about the situation with Finance commenting that normally they would chase up any "change of income" like a flash, seeing an opportunity to get more money out of the client.

He then added: (pretty much exact wording as far as I can remember while it is fresh in my mind)
"I mean, at the moment, I'm going round and our clients have to justify the care packages they've already been given. We're told, go out there and do everything you can to save money. If you can find any reason, any small excuse to reduce hours, do it. I have to save a certain amount every week. 

I mean you're ok. I'm going to go back and say "this is great, good value for money, whatever you do, DON'T touch it." But because I haven't saved money with you, this means I'm going to have to cut money from other people I see.

It shouldn't be too bad at the moment because I managed to save £750 from a care package last week, which is great. So they're really pleased with me at the moment... well... I suppose it isn't great for the poor sod who lost his care package, but I mean, I did find them alternatives so I don't feel too bad about it.

You can usually find ways to save money. And I do find people who receive care who shouldn't be. I'm usually really pleased to take away their care. But I mean, they're usually the people playing the system and who should be working but aren't."


I don't know where to start with this statement.

a) I was sent someone here on false pretences. They were not here on my behalf to to "check how my care plan was working out and that everything was ok". They were here on behalf of the council to see if they could cut my hours at the slightest excuse.

b) Targets are being set per council worker, ie per case load. This means that it doesn't matter how much in total need that case load is, a certain amount MUST be saved, regardless of the needs of the individuals concerned.

c) The attitude being fostered is obviously poisonous. This was on the surface a genuinely nice sympathetic guy. Yet he had been suckered into a system where he thought it was right to go round taking care hours away and judging people.

And before you tell me that he is a professional who would know who is playing the system, I would add that he had never heard of lupus, a relatively common and in some cases debilitating autoimmune illness which renders 50% of patients unable to work. Yet on the surface most people "look well". How many of the people he has judged "capable of working" and "undeserving of care" have similar diagnoses of which he is ignorant?

There are a lot of people dismissing claims of problems and cuts in social care as scaremongering. Yesterday's experience is to me direct personal proof of the effects on the ground.

P.S.  I'm spending today feeling guilty at the thought of those unknown unsuspecting fellow disabled people in that chap's caseload who ARE going to lose hours from their care package this week, simply because I did not...

Tuesday, 13 September 2011

Paperwork Madness

Managing my paperwork has become more and more of a headache as my illness has advanced.

Some tips have helped. Precarious tottering mountains of paper were moved into folders. Creaking unliftable folders were later sorted and emptied into a lightweight filing type cabinet. However I still struggle to keep up with the unending weekly post and letters can be found dotted around my flat in the most unlikely of places.

After 2 years of asking for help and several threatening letters from social services wondering why I wasn't dutifully sending in my records and receipts for my direct payments, I was reassigned a social worker.

This led to a reassessment which took several 2 hour long sessions after which it was agreed that I did indeed need an hour of help a week for paperwork, to be added to my direct payments. I was informed that I would have to undergo the same reassessment 3 months later to check that everything was "ok" and I was using the hour for paperwork. (Drat. There goes my plan for weekly skydiving).

This had to be written up as a report and presented to a panel for approval. Unfortunately it was turned down by the council who insists that I MUST use an agency chosen by them. And I am only allowed an hour a week for a month and half an hour after that. So much for disabled people having choice over their lives.

Not only this, but because of this "increase in care" I must now have a financial reassessment. They will kindly send me a list of all the paperwork I will require at the meeting...

This leaves me in a bit of a dilemma. I am not physically able to prepare this paperwork myself. But with the limited hours they have allocated me, I do not have the spare time to ask my newly allocated helper from the agency to help me either. We are currently ploughing through a backlog of paperwork and sorting out my filing cabinet, before scouring the flat for all the letters currently hiding and giggling from under various pieces of furniture.

In other words they are asking me to produce the paperwork myself so that I can have someone to help me with paperwork...

On a separate note I am appalled by the cost of all this. The amount of extra care I will receive totals 28 hours per YEAR. I will be expected to contribute a third of the cost under the "fairer charging scheme" which laughably charges people on benefits but not people who work (a subject for another time perhaps). So the yearly cost to the council will be around £170.

How much more have all these assessments cost? And that's not counting the exhaustion and inconvenience caused to myself. All this for half an hour help with my paperwork.

P.S. My "paperwork helper" was just here. I asked her if we would be ready for a financial assessment in 2 weeks time. She laughed.